I set them out for the pleasure of knowing some cats DO MAKE IT and for you to read in time of need to share them with your vet. There are contact details for vets when I can get them.
Caveats: FIP is hard to diagnose without fluid or tissue samples from paracentesis, surgery or necropsy ( post mortem ) so some FIP stories might not be about FIP eg. Tomten - who was a misdiagnosis, and Natasha who lived with Gringo ( a survivor below ) so was treated as FIP as well. Natasha passed last year of natural causes at the age of 21. "Dr. Legendre has not included her data on his paper since he doubted that she had FIP (he had no doubts about Gringo). Natasha's necropsy revealed no FIP, as I recall. Dr. Legendre was correct as always."
The natural history of FIP also includes cats who live for many years without specific treatment - up to 7 years with dry FIP according to Dr Pedersen. (see spontaneous remission case - Madiera)
All cats whose stories appear here I know are still alive and well at time of page review may 2013 except Toby who is MIA. Some are completely cured and on no medication like Dusty (who's owner contacted me through this blog to say he is alive and well :) Most, like Blade and Oliver are stuck in a chronic 'managed' state as a cat with diabetes, heart or renal failure might be. The big question is how busted are her immune organs? Can they 'regenerate'? I think so as the cells involved are derived from high turnover organs and/or highly responsive to signalling molecules so this can be very quick (days), even instantaneous (minutes), but for complete healing, to have the bodies immune balance again under proper control I think seems to take over a year.
Reading through these case histories it seems that three or more years of therapy are needed before removing the drug support. Certainly there's enough accumulated evidence in my mind to say don't fiddle with the dose of anything when you have it stable - be very cautious in deciding to reduce doses. I honestly wonder if the the two days I missed giving Mishka her interferon because my son was away at camp tipped her over.
the Polyprenyl Hall of Fame cats must be one year+ on treatment and dry Fippers. (update 2017: appears my blog has inspired them to catalogue their stories better - you can now go to http://fipsurvivorguide.com/meet-the-fip-survivors/ and request the book) there are other stories there.
WET FIP SURVIVOR
check out Luna who is on a trial anti viral at UC Davis - this currently seems a sensible option if you can get it.
Example maintenance dose of PI used:
- Gracie Mae was on PI for over a year, completely withdrawn, lived for another year and passed of HCM
-Joey started on PI 3 mg/kg, three times a week. After a year or less, his vet reduced his dose to 3 mg/kg once a week and has been using the smaller dose for 6+ months by now
-Gringo (originally published in AL 2009 paper), on PI since 2006. Currently, and for several years, has been getting 7 ml twice a week. The owner writes: "And we went to the vet last month and he weighed 17.3 lbs. And he’s 10 years old". Recalculating the dose: 1.8 mg/kg twice weekly.
-Doll, on PI since 2009. Per owner: "Doll is on a dose of 3 cc twice a week. She is asymptomatic on that dose. Her weight is about 12 pounds. But, she is actually a very small cat who put on a lot of weight when she first started on PI. As long as the weight holds constant, the PI is still effective. If she loses any weight, I will know to raise the dose of PI". Recalculating the dose: 1.1 mg/kg twice weekly.
- Gringo - dry FIP 2006 PI Hall of Fame
- Dusty - wet FIP 2007 australian cat :)
- Miracle - wet FIP 2009
- Blade - wet FIP 2010
- Oliver MacKinnon - dry FIP January 2010 PI Hall of Fame (Now a spunky 2 yo. He received 5ml daily and quickly recovered. Still well Feb 2013 and on his 5mls administered in three little squirts every morning)
- Frank - dry FIP 2011 PI Hall of Fame
- Paloma - Dry FIP ?Dec 2012 PI hall of fame
- Madiera - wet FIP March 2012
- Tigger- wet FIP
- Cakes - aged 12! PI Hall of Fame
- Lilly - dry FIP Nov 2012 brought back from the brink on PI and very well by Jan 2013
- Chompsky - was heading downhill then added prednisone to his PI and has rallied
- Bella - early (wet) FIP famous cat with own plushie and facebook page
- Gus - abdominal wet FIP working diagnosis April 2014, considered in full remission Prednisone and Pentoxifylline
- Rose and Bud - survived wet FIP 12 years ago! story submitted anonymously in the comments section (below the post)
other cats for whom the diagnosis was uncertain:Toby - Die another day survived possible wet FIP but whereabouts unknown
Tam - ? wet FIP Jan 2013 survivor, first cat to get Skulachev Ions
Tomten - misdiagnosis of dry FIP July 2012, originally on feline interferon
- case history well worth reading. Tomten has granulomatous enteritis not caused by FeCov. I moved Tomten out of the survivor's list when he rather unexpectedly began to deteriorate but he's currently a good news story again. "FIP likes to cause granulomatous inflammation, but not all cases of granulomatous inflammation are due to FIP. When granulomatous inflammation is seen on an intestinal biopsy, the specimen should be stained with a special stain that detects coronavirus in the tissue. If the stain comes back positive, the cat has FIP"
John Robbie - dry FIP April 2012 - a real character, did very well for many months but tragically died aug 2014 so moved from survivors group
Update: this is my further mission - I remain hopeful that the manufacturers will DROP THE VET/DISTRIBUTOR DRUG MARKUP and allow direct wholesale price purchase as we were able to arrange for Mishka. It is doubly unethical on the part of vets since we are always fundraising for FIP research. Unfortunately the local vet at NW Animal Hospital Devonport attempted to charged us a ridiculous AU$300 markup for the ordering of interferon ( a simple phone call and stick couriered package in the fridge !) In this digital age drug pricing is transparent - the sharing economy is going to have to find an ethical way of addressing drug prices.